Johnny, great website and a very sad story. What a beautiful little girl.
I know when my daughter was born and we found out that she would need MAJOR surgery right away, then additional MAJOR surgeries throughout her life, we were devestated. Luckily God looked over her and she has made it through them all incredibly well. She is down to her last one and they never get easier.
We would love to work with you and the family on putting together a benefit BBQ, possibly in conjunction with some other sort of Fundraising as well.
Let us know how we can help..
We will keep her and her family in our thoughts and prayers and continue to pray for the best. Please keep us informed on everything..